Working with experts

Specialists who manage CTCL

Once you’re diagnosed with CTCL, your doctor will determine if other healthcare specialists need to be involved in your treatment. For some patients, CTCL management requires help from many different specialists. It may seem overwhelming at times, but the goal is to get a complete picture of your health.

Here are some of the specialists who may be part of your care team—and what they do:

Dermatologist

  • A skin specialist who can help you better manage the effects of CTCL on your skin
  • May be the first specialist you meet with, or are referred to, since the symptoms primarily show on your skin

Hematologist/Oncologist

  • A doctor who specializes in cancers, like CTCL, that affect blood cells
  • This specialist is important when CTCL affects a person’s blood, lymph nodes, and/or other parts of the body

Pathologist

  • A doctor who looks at biopsies (tissue samples) under a microscope to study a disease. Pathologists confirm a cancer diagnosis

Radiologist

  • A doctor with special training in diagnosing diseases by reading x-rays and other types of scans

Nurse practitioner (NP)

  • A registered nurse with advanced training in patient care who can aid with disease treatment and management

Registered nurse (RN)

  • A healthcare professional who can help with symptom and side effect management and who is a source of support

Physician assistant (PA)

  • A healthcare professional who works closely with physicians to create care plans and provide patient care

Infusion nurse

  • A registered nurse who specializes in giving IV (intravenous) fluids, including chemotherapy

Social worker

  • A professional who can help you navigate the emotional, social, and insurance challenges of CTCL

Psychiatrist/Psychologist

  • A mental health specialist who can help you learn how to emotionally cope with CTCL

Pharmacist

  • A healthcare professional who can help provide information to patients about prescribed medicines
“The moment I entered my care team’s office, I felt comfortable.
I felt like I could say anything. I felt heard and understood. They’re just amazing people.”

— Carole, a real patient living with CTCL